Other Resources
UVA School of Medicine: Epilepsy Patient Education Resources The University of Virginia Health System offers many patient education handouts related to epilepsy. Most of the handouts they provide are available as PDFs online.
Radio Program: What do we know about epilepsy today? (48 mins) In this WNPR radio broadcast from May 2014, experts discuss what is currently known about epilepsy. The expert panel includes Dr. Erica Schuyler, a neurologist at Hartford Hospital, Allison Gamber, who serves as the associate director of the Epilepsy Foundation of Connecticut, and Carl Zimmer, who is a science columnist for The New York Times.
Healthline: The Effects of Epilepsy on the Body This Healthline site has a simple infographic that shows what happens to the body both during seizures and over the long term. It is especially useful in demonstrating some of the non-neurological complications associated with epilepsy.
Epilepsy's Big Fat Miracle This New York Times article describes a family's experience of using the Ketogenic Diet to help control their child's refractory epilepsy. It is recommended reading for any family considering the Ketogenic Diet as a treatment option.
International League Against Epilepsy The International League Against Epilepsy (ILEA) is an organization devoted to promoting research, spreading information, and improving services for people with epilepsy. Much of the information on this site is directed at researchers and health care providers, but may be of use to those with a scientific background.
International Bureau for Epilepsy The International Bureau for Epilepsy (IBE) is a non-profit organization dedicated to improving social conditions for people with epilepsy worldwide. The IBE website contains much information about their advocacy activities and includes ways to get involved in the community of epilepsy supporters.
References
Centers for Disease Control and Prevention. (n.d.). Living well with epilepsy. Retrieved from:
http://www.cdc.gov/epilepsy/pdfs/epilepsy-brochure-provider-references.pdf
Cristina, V., C, A., & Rubens, H. (2011). Epilepsy Surgery in Children. Epilepsy in Children - Clinical and Social Aspects. doi:10.5772/18490
Eun, D., & Dong, H. (2011). Practical Use of the Ketogenic Diet in Childhood Epilepsy. Epilepsy in Children - Clinical and Social Aspects.
doi:10.5772/20076
Fisher, R. S., Acevedo, C., Arzimanoglou, A., Bogacz, A., Cross, J. H., Elger, C. E., … Wiebe, S. (2014). ILAE Official Report: A practical
clinical definition of epilepsy. Epilepsia, 55(4), 475–482. doi:10.1111/epi.12550
Schachter, S. C. (2015). Antiepileptic drugs: Mechanism of action, pharmacology, and diverse effects. UpToDate. Retrieved from:
http://www.uptodate.com/contents/antiepileptic-drugs-mechanism-of-action-pharmacology-and-adverse-effects
Turner, Z., & Kossoff, E. H. (2006). The Ketogenic and Atkins diet: Recipes for seizure control. Practical Gastroenterology, 39. Retrieved
from: http://practicalgastro.com/pdf/June06/TurnerArticle.pdf
University of Virginia Health System. (2007). First aid for seizures. Retrieved from:
http://www.medicine.virginia.edu/clinical/departments/neurology/divisions/epilepsy/downloads/first-aid-for-seizures.pdf
University of Virginia Health System. (2014). Parenting children with epilepsy. Retrieved from:
http://childrens.uvahealth.com/services/neurology/images-and-docs-1/ParentingChildrenEpilepsy.pdf
Wilfong, A. (2015). Seizures and epilepsy in children: Initial treatment and monitoring. In D. R. Nordli (Ed.), UpToDate. Retrieved
from: http://www.uptodate.com/contents/seizures-and-epilepsy-in-children-initial-treatment-and-monitoring
Wilfong, A. (2015). Seizures and epilepsy in children: Refractory seizures and prognosis. In D. R. Nordli (Ed.), UpToDate. Retrieved
from: http://www.uptodate.com/contents/seizures-and-epilepsy-in-children-refractory-seizures-and-prognosis
Radio Program: What do we know about epilepsy today? (48 mins) In this WNPR radio broadcast from May 2014, experts discuss what is currently known about epilepsy. The expert panel includes Dr. Erica Schuyler, a neurologist at Hartford Hospital, Allison Gamber, who serves as the associate director of the Epilepsy Foundation of Connecticut, and Carl Zimmer, who is a science columnist for The New York Times.
Healthline: The Effects of Epilepsy on the Body This Healthline site has a simple infographic that shows what happens to the body both during seizures and over the long term. It is especially useful in demonstrating some of the non-neurological complications associated with epilepsy.
Epilepsy's Big Fat Miracle This New York Times article describes a family's experience of using the Ketogenic Diet to help control their child's refractory epilepsy. It is recommended reading for any family considering the Ketogenic Diet as a treatment option.
International League Against Epilepsy The International League Against Epilepsy (ILEA) is an organization devoted to promoting research, spreading information, and improving services for people with epilepsy. Much of the information on this site is directed at researchers and health care providers, but may be of use to those with a scientific background.
International Bureau for Epilepsy The International Bureau for Epilepsy (IBE) is a non-profit organization dedicated to improving social conditions for people with epilepsy worldwide. The IBE website contains much information about their advocacy activities and includes ways to get involved in the community of epilepsy supporters.
References
Centers for Disease Control and Prevention. (n.d.). Living well with epilepsy. Retrieved from:
http://www.cdc.gov/epilepsy/pdfs/epilepsy-brochure-provider-references.pdf
Cristina, V., C, A., & Rubens, H. (2011). Epilepsy Surgery in Children. Epilepsy in Children - Clinical and Social Aspects. doi:10.5772/18490
Eun, D., & Dong, H. (2011). Practical Use of the Ketogenic Diet in Childhood Epilepsy. Epilepsy in Children - Clinical and Social Aspects.
doi:10.5772/20076
Fisher, R. S., Acevedo, C., Arzimanoglou, A., Bogacz, A., Cross, J. H., Elger, C. E., … Wiebe, S. (2014). ILAE Official Report: A practical
clinical definition of epilepsy. Epilepsia, 55(4), 475–482. doi:10.1111/epi.12550
Schachter, S. C. (2015). Antiepileptic drugs: Mechanism of action, pharmacology, and diverse effects. UpToDate. Retrieved from:
http://www.uptodate.com/contents/antiepileptic-drugs-mechanism-of-action-pharmacology-and-adverse-effects
Turner, Z., & Kossoff, E. H. (2006). The Ketogenic and Atkins diet: Recipes for seizure control. Practical Gastroenterology, 39. Retrieved
from: http://practicalgastro.com/pdf/June06/TurnerArticle.pdf
University of Virginia Health System. (2007). First aid for seizures. Retrieved from:
http://www.medicine.virginia.edu/clinical/departments/neurology/divisions/epilepsy/downloads/first-aid-for-seizures.pdf
University of Virginia Health System. (2014). Parenting children with epilepsy. Retrieved from:
http://childrens.uvahealth.com/services/neurology/images-and-docs-1/ParentingChildrenEpilepsy.pdf
Wilfong, A. (2015). Seizures and epilepsy in children: Initial treatment and monitoring. In D. R. Nordli (Ed.), UpToDate. Retrieved
from: http://www.uptodate.com/contents/seizures-and-epilepsy-in-children-initial-treatment-and-monitoring
Wilfong, A. (2015). Seizures and epilepsy in children: Refractory seizures and prognosis. In D. R. Nordli (Ed.), UpToDate. Retrieved
from: http://www.uptodate.com/contents/seizures-and-epilepsy-in-children-refractory-seizures-and-prognosis